'Finding Our Power Claiming Our Place'
A Conference for Adults with Cerebral Palsy
Brought to you by the CP Group, made possible in part by a CP Awareness Grant from Janet, Jenner & Suggs, LLC and Cerebral Palsy Magazine
“Life and Times with Cerebral Palsy.”
OCTOBER 19- 22, 2007
FRIDAY, OCT. 19
3:00 PM - 6:00 PM --- REGISTRATION - TIRED FROM A LONG TRIP? REFRESH YOURSELF WITH A MASSAGE!
Many conference attendees will arrive at the DoubleTree Hotel
after a long and arduous trip. You can banish your fatigue by enjoying a relaxing
massage at the hotel. The massage is free and will help put attendees in a
positive frame of mind as they begin the conference. You will be able to
sign up for your massage at a registration table in the lobby. The time
available for massage is limited, so be sure to register as soon as you reach
DINNER --- ON YOUR OWN - There are restaurants in and around the DoubleTree, and attendees will be able to find one that satisfies their taste buds and their budgets.
7:00 – 9:30 PM --- RECEPTION FOR CONFERENCE PARTICIPANTS AND FRIENDS - The conference will open with a reception for conference participants and friends. The reception provides an informal and relaxed atmosphere to meet new friends and renew old acquaintances. Complimentary hors d'oeuvres will be served and bar service will be available.
SATURDAY, OCT 20
8:00 – 9:00 AM CONTINENTAL BREAKFAST
9:00 -10:00 AM - KEYNOTE ADDRESS – DR. DARRELL PONE Dr. Pone, born with cerebral palsy, has practiced medicine as a Board Certified Medical Doctor for more than 20 years. His specialty is phy which he chose because he felt that his CP would help him better relate to the majority of his patients who also have a physical disability. Dr. Pone has received numerous awards from medical, civic and religious organizations. Dr. Pone will reflect on the challenges presented by CP and the means he used to overcome these challenges.
10:00 AM – 11:00 AM IF “I ONLY HAD A JOB.,” Arundelton Consulting was established in January of 2006 by Richard Barnard following his retirement as Senior Vice President of Melwood Corporation after a 37 year career. Melwood is a non-profit Community Rehabilitation Program serving individuals with developmental disabilities. From the beginning, Melwood had the basic philosophy that in order to provide the best and most advanced rehabilitative services it had to operate as a business. To that extent Mr. Barnard planned and implemented a very aggressive business model that took the company from a single revenue source in the early sixties to a $70M corporation with multiple revenues streams serving over 2000 individuals.
Mr. Barnard has been working on behalf of the non-profit community his entire career with special emphases on education and training, business planning and development, Social Entrepreneurship (alternative revenue streams), fund development and federal contracting. Using his knowledge of the nonprofit community along with years in business development and operations he assists non-profits in realizing future sustainability by increasing unrestrictive revenues through business ventures.
12:00 NOON – 1:30 PM --- LUNCH
2:00 – 3:30 PM THE FELDENKRAIS METHOD
The Feldenkrais Method (and its evolution in the Anat Baniel Method) consists of individual or group lessons to improve thinking, feeling, moving, and sensing in any direction with equal ease and comfort. Any client (including those with cerebral palsy) can anticipate experiencing noticeable differences after every individual or group lesson such as --
-reduced pain or
discomfort in back, neck, or joints of the arms and legs
-expanded vitality, well-being, creativity, and/or problem solving
-clearer self image
-easier breathing, speaking, and/or decreased drooling.
Practitioners use gentle touch, movement, and/or words to create focused learning conditions and direct the attention of the learner.
More information is available at www.feldenkrais.com and www.anatbanielmethod.com.
Presenter – Carla Oswald Reed
4:00 PM– 5:30 PM EXERCISE - ARE WE HAVING FUN YET?
In spite of advances in medical care and technology, physical activity, including exercise, is still a key ingredient to a healthy lifestyle. But for many people, exercise is laborious and boring. This session features two therapists/athletes who have taught sports and physical activities in a variety of settings, the session will show how to become more physically active. An overview of community programs that provide adaptive physical activities will be provided and demonstrations of wheelchair sports will be offered.
PRESENTERS- Brenda Gilmore, Joan Joyce
DINNER –6 PM THE DINNER IS IN THE HOTEL AND IS INCLUDED IN YOUR CONFERENCE FEE.
8:00 PM -- SOCIAL WITH DJ
SUNDAY 0CT 21
8:00 – 9:00 AM CONTINENTAL BREAKFAST
9:00 AM - 11 AM AGING AND CP -- Early aging in adults with CP has been the subject of a number of reports in recent years, but less attention has been paid to ways that can help alleviate this problem. A panel of health care professionals and adults with CP will discuss the options available to adults, including alternative medicines.
12 NOON – 1:30 PM LUNCH
2 – 3:30 PM DISABILITY CULTURE
“Disability Culture – What’s the Purpose?” is the title of a paper
– 5:30 PM GENDER ISSUES - This was one of last year's most popular discussions, and
consists of two concurrent sessions, one for men, one for women. Although the
fears and joys of finding an intimate partner/significant other (or simply a
best friend) occupied a significant portion of the discussion, other topics
(how do I tell my mother I want to stop relying on her and hire a PCA?) were
also discussed. The workshop has no fixed agenda; participants choose the
topics they wish to discuss.
Co-presenters - Robert Watson and Linda Mahler
8 – 9:00
PM WHAT LIES AHEAD FOR CP GROUP - The decision to move the
2008 conference from
OCTOBER 22 MONDAY
8 AM – 9 AM CONTINENTAL BREAKFAST
9 AM – 10 AM COMPLEMENTARY AND ALTERNATIVE MEDICINE Complementary and
alternative medicine (
The claims that
Presenter – Dina Dror
10:00 - 10:30 AM CHECK OUT
11 – NOON CREATING NEXT YEAR’S CONFERENCE
Planning next year’s conference begins as soon as the current conference is completed. Selecting topics for discussion next year is a major task. If you would like to lead a discussion group at next year’s conference, now is the time to talk to the conference committee about your ideas. And if you want to get involved in working on the conference committee, there’s a lot of work to do, including finding speakers and presenters, dealing with the logistics of bringing a large number of people to the conference site, finding ways to finance the conference, publicizing the conference and building outreach programs to contact adults with CP that haven’t heard about the conference. The CP Group needs your help, so plan on attending this important session.
Presenter – Richard Bernard
This year’s conference was made possible in part by a CP Awareness Grant from the law firm of Janet, Jenner & Suggs, Baltimore. MD, and by a grant from Cerebral Palsy Magazine.
NOTE- The agenda is subject to change
RICHARD BARNARD is on the Board of Directors of Hope House, as
treasurer, an alcohol and drug addiction recovery program in
DINA DRLOR: BA in Psychology,
BRENDA GILMORE currently serves as the coordinator for the Blaze Sports Club of Washington DC. She is a former nationally ranked wheelchair tennis player, and was the first African American female to achieve this status, holding a top ten national ranking for 5 consecutive years. Brenda is a certified tennis instructor and teaches both able bodied and physically challenged students.
She also volunteers for the
Joan Joyce is the recreation
therapy coordinator at
LINDA MAHLER - Linda has been a disability rights advocate since
1979. She earned her law degree in 1986 and worked at the
CAROL MARFISI, Senior
instructor Disability Right's and Culture, Institute on Disabilities -
ELIZABETH MATTFELD, graduated with a Master's Degree in Community
Psychology from the
DARRELL W. PONE, MD is Board Certified in Physical Medicine and
throughout his career has worked with patients with disabilities living in the
lower social economic communities of
Dr. Pone has served as a Consulting Physiatrist for the United Cerebral Palsy
of Suffolk County. He has served as an Assistant Attending physician at
We’ve Come This Far by Faith is Dr Pone’s autobiography which is now available in its second edition and is available Amazon.com. Key word, Pone, Darrell
REED has been working
with individuals with cerebral palsy and other developmental challenges
for her entire 38 year career. She graduated from the
ROBERT WATSON is the Executive Director of DateAble, a nonprofit dating service for people with and without disabilities. He is also President of United Cerebral Palsy of Montgomery and Prince Georges County (MD) and advises many other disability advocacy organizations. He has spoken in the United States, Canada and Australia on a variety of disability-related subjects, including disability awareness, sexual intimacy issues, personal financial planning for a person with a disability, and the critical importance of being your own personal advocate.
This year’s conference was made
possible in part by a CP Awareness Grant from the law firm of Janet, Jenner
David Bauer Guioco@aol.com, Molly Kennedy firstname.lastname@example.org, or Robert Watson email@example.com