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Our Associates

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TheCPGroup.org Directors:

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Robert Watson

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Click on a Name Below to Read about the Professional Achievements and Philosophies of our Associates.

Associates are listed in alphabetical order according to last name. You may click on the letters below to quickly move to a particular part of the alphabet (skip alphabet selection links).

A    B    C    D    E    F    G    H    I    J    K    L    M
N    O    P    Q    R    S    T    U    V    W    X    Y    Z

Susan Alperen

From: Peabody, Massachusetts

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Joseph Amoroso

From: Bordentown, New Jersey
Email: NJCrip@yahoo.com
Occupation: Disability Services/Advocate

Professional Profile: I serve as the Administrator of Information and Assistance Services for the New Jersey Division of Disability Services.

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Laura Antranigian

From: Portland, Maine
Email: spinny@maine.rr.com
Occupation: DD Council Member

Professional Profile: I was on the Speaking Up For Us Board Self Advocacy state wide orginization for 4 years, and was Chairperson for two years. I am now a Developmental Disabilities Council member, and I am also on the Independence Plus Committee, and in the Leadership Institute.

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Maureen Arcand

From: Madison, Wisconsin
Email: maureenarcand@yahoo.com
Occupation: Retired Advocate

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Andrea Archer

From: Colorado Springs, Colorado
Email: andreaa@pcisys.net
Occupation: American with Disabilities Act Coordinator

Professional Profile: I currently work for an ADA (American with Disabilities Act) Center. There are 10 ADA centers in the United States. We offer trainings, materials and technical assistance on the ADA. I have worked with Independent Living Centers in Colorado. I really appreciate connecting with the staff of the centers and the consumers.

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Thor Armbruster

From: Austin, Texas
Email: armbrustert@tsbvi.edu
Occupation: Education

Professional Profile: I have worked with the blind for the past 14 and half years. I currently am the assistant coordinator of the Post Secondary program. It is a joint venture between the Chris Cole rehab center and the Texas School for the Blind. My boss is the vice president of the Texas chapter of NFB. She keeps a fire going under me. For the past 8 months I have been co-host a radio show on "disabilities," called Breaking Boundaries.

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Michael D. Aronin

From: Odenton, Maryland
Email: funnyguy@erols.com
Occupation: Speaker/Comedian/actor.... School IEP Leader

Professional Profile: Michael Aronin is a nationally acclaimed speaker who teaches his audiences how to get past personal shortcomings and move forward productively in their careers. Being both a comedian and motivational speaker, he is able to make this difficult topic both entertaining and enlightening.

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David Bauer

From: Washington, DC
Email: guioco@aol.com
Occupation: Retired

Professional Profile:

  •  Co-founder of TheCPGroup.org
  •  Former consultant to UCPA in the areas of aging, and sexuality
  •  Former Vice President of the Coalition of Sexuality and Disability
  •  Former board member of the Center for Independent Living in Manhattan, NY
  •  Former research associate of the Center for Disability and Health Policy Research, National Rehabilitation Hospital, Washington DC
  •  Former senior economist, The Conference Board NY, NY
  •  Former newsletter editor, Dateable , Washington DC
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Bill Beck

From: Broomall, Pennsylvania
Email: yourbuddybill@hotmail.com
Occupation: Independent Living Specialist

Professional Profile:

  •  Working the past 15yrs in Independent Living/Disability Advocacy
  •  MEd-Rehab Counseling & BS-Rehab Education Services (Penn State University)
  •  Board Member - UCP of PA Board Member
  •  Former President - C.A.D.E.S. (a former local UCP)
  •  Adapted rower & former adapted skier
  •  Former drummer
  •  Have been driving an adapted van for the past 20yrs+
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Benjamin

From: Alabama
Email: bhsutcliffe@hotmail.com
Occupation: Website Manager

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Stephen Paul Bisig

From: Eldersburg, Maryland
Email: flyingscamper@yahoo.com
Occupation: Case Manager-Department of Social Services

Professional Profile: College graduate-BS in Psychology, AS in Deafness Communication (interpreting); former marathon and ultra marathon runner; airplane pilot (private pilot's license); worked professionally in deaf education (10 years), children's mental health (5 years), epilepsy and seizure disorders (9 months), vocational rehabilitation (3 years) and social services-homelessness/housing emergencies (7 years).

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Kathryn Blisard

From: Titusville, New Jersey
Email: psnnj@msn.com
Occupation: Disability Policy Consultant

Professional Profile: Since 1997 I have been a consultant with my own shop - People Support Network of NJ. My major funding comes from the NJ DD Council.  I work to release and prepare people in our state ICFMR's to return to community living per our Olmstead State Plan (such as it is). 

PSN also works in self-advocacy, creating "easy language" materials and recently we have begun to work on domestic and other violence's against women with disabilities.

From 1990-1998 I worked for UCP of NJ and then NJ DD Council as a disability advocate. During this time I worked on the closure of two of our development centers. Pryor to that I worked as an assistant director for an IL program and I am a founding member of a CIL located outside Trenton.

Presently, I am a member of our state IL Council, Women with Disabilities Health Task Force, the Personal Assistance Services Advisory Council, NJ MiCASSA Coalition.  A group of us are in the process of forming a NJ ADAPT and I have been involved with ADAPT actions for the past couple of years. 

My volunteer work and interests are women with disabilities issues particularly parenting, sexuality and aging and inclusive worship. I have been married for 24 years, we have two grown children who have learning disabilities (one is a chef, the other works for Comcast News - no thanks to our school district) and my youngest sister has Downs so disability is definitely part of my life. Lately I've been dealing with aging, pain and some minor secondary conditions issues. Otherwise my husband and I lead a quiet boring life with our dog Missy.  I am very excited about becoming a member of the CP Group.

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Jonna Kay Bloodworth

From: Springdale, Arkansas
Occupation: Rehab Assistant

Professional Profile: I am a Rehab Assistant for the sate of Arkansas for the Office of the Deaf and Spinal Cord, Ms. Wheelchair Arkansas 2008, and also a mother of three and grandmother of five.

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Miriam Brinley

From: Washington, DC
Email: miriam.brinley@gmail.com
Occupation: Day Program specialist and case manager

Professional Profile: I am a 23 year old native of Washington D.C. I have added on to my experience as a person with cerebral palsy by working at the National Catholic Partnership on Disability, the ABLEDATA database, and starting the first advocacy group for students with disabilities at the College of William and Mary, where I received my bachelor's degree. I am currently volunteering full-time for the second of two years with the Capuchin Franciscan Volunteer Corps in NE DC, working with people with severe mental illness. I am excited to be attending the first Cerebral Palsy Group conference.

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Scherrone N. Briggs

From: Arlington, Virginia
Email: scherrone@yahoo.com
Occupation: Disability Employment Grant Spec.

Professional Profile: I am originally from NJ. I have a BA in Political Science from Rutgers University ('94) and a Master's in Pub. Admin. from American University ('97). I have been living in the Washington, DC area for the past 14 yrs. Currently, I have been working for the US Department of Labor for the past 11 yrs. I have Athetoid CP where my Upper extremities are more affected then my lower extremities. I mainly use a power wheelchair for outside the house. I live with my cat, Sandy.

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Gary Bruegging

From: Waldorf, Maryland
Email: garyjb98@comcast.net
Occupation: Retired, Federal Employee

Professional Profile: M.A. Degree in political science, Catholic University of America, 1981; B.A. Degree in political science, Principia College, 1972; AA Degree in general studies, Prince George's Community College, 1970; Paralegal Certificate, Prince George's Community College, 1989.

I'm a retired Federal Government employee since 2003. Retired with 32 years experience mostly as a Technical Writer and Editor. I was born with cerebral palsy. My interests are in civil rights for the disabled, politics, and photography, travel, and sports.

I've traveled extensively throughout the United States. Some of my many travels include two horseback trips in the Rocky Mountains; two white water raft trips on the Colorado River through the Grand Canyon and on the Green River in Utah; month long camping and photography trip in the Far Western States of the U.S. A trip to Bermuda in 1986.

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Mary E. Brundege

From: Schenectady, New York
Email: marybrundege@mac.com
Occupation: Disabled/Small Business Owner - Tour Company for Disabled Adults

Professional Profile: I have an AAS in Early Childhood Education, a BA in Communication Disorders with Emphasis in Deaf Education, and I have completed the Beginners and Intermediate Certificate Programs in American Sign Language.

My work background is 19 years working in community based homes for adults and children with disabilities. I also ran a MN based companies offices in FL and MA, planning and supervising tours for disabled adults traveling throughout the US, Canada, Mexico and the Caribbean.

I recently opened my own tour company providing quality safe vacations for disabled adults. I became disabled about 5 years ago after a work accident and am trying to show others what there is out there for them, that a disability does not mean that you are not able to explore this wonderful world we live in.

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Bobby Butler

From: Stillwater, Oklahoma
Email: bobbybutler1969b@yahoo.com

Professional Profile: Objective Obtain and secure a counseling position. Experience 1996 Oklahoma State University Stillwater, Oklahoma Internship, Action, Inc. – Head Start Program (300 hours) Helped with weekly plans Sat in on planning committees Helped with lunch and recess duties Helped with snack time, nap time, and time – out sessions 1994 Oklahoma State University Stillwater, Oklahoma Volunteer, Rainbow Preschool (120 Hours) 1992 Oklahoma State University Stillwater, Oklahoma Volunteer, Department of Human Services – Payne County 2002 East Central University Ada, Oklahoma Internship, Progressive Independence, Norman Oklahoma October 2002 - Current Oklahoma Partnership - consumer consultant Wrote policies for state personal care services, attended national conference at CMS – Center for Medicare/Medicaid Services Education July 1994 Oklahoma State University Stillwater, Oklahoma Bachelor of Arts, Psychology May 1996 Oklahoma State University Bachelor of Science, Family Relations, Child Development with an Emphasis on Counseling May 1998 Oklahoma State University Stillwater, Oklahoma Bachelors of Arts, Sociology May 2002 East Central University Ada, Oklahoma Master of Science, Rehabilitation Counseling Honors, Memberships, and Acknowledgments • Certificate for foster parenting, 1992 • President of the Challengers – a campus club for students with disabilities, 1992 – 1997 at Oklahoma State University • Senator for Off – Campus Student Association, 1991 – 1994 • Committee Chair – University Affairs, Spring 1994

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Dana E. Canevari

From: New Haven, Connecticut
Email: dana.e.c@juno.com
Occupation: Advocate at an Independent Living Center (ILC)

Professional Profile: I am an Advocate at an ILC in CT. I graduated in 1997 with a BSW from Southern CT State University. I have worked as an information & Referral Specialist, Assistive Technology Coordinator, and a Housing Advocate at various times in 5 yrs. In also currently serve as the Co-Chair of the New Haven Commission on Disabilities.

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Jacquelyn Cartagena

From: Alexandria, Virginia
Email: jacjacs2cute@yahoo.com
Occupation: Manager

Professional Profile: My Brother has CP, is 50 years old and lives with my elderly parents in Indiana.

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Meg Naomi Carter

From: Denver, Colorado
Email: cowsbestfriend@gmail.com
Occupation: Student

Professional Profile: I am currently a student with training in mental health and counseling. I am working on a BS in Business and Non-Profit organizations. My goal is to start new resources for individuals with disabilities in my state that can be easily accessible to all individuals. I will continue to be a mentor to children with disabilities on my area any way I can.

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Yoosun Chung

From: Fairfax, Virginia
Email: yoosunc@hotmail.com
Occupation: Research Assistant Professor

Professional Profile: As for my professional life, I am a research assistant professor at George Mason University (GMU). I earned a doctoral degree in Assistive Technology at GMU in 2004. I am an AAC user. Using my AAC, EZKeys, I am currently teaching two graduate Special Education courses, Computer Applications for Special Populations and Internet as an Assistive Technology Tool.

I have been involved with several projects, including Literacy Access Online (LAO), the National Assistive Technology Research Institute (NATRI), and the Kellar Instructional Handheld Data (KIHd) System. In addition, I am teaching two online graduate courses, for East Carolina University.

As for my personal life, I have married for 10 years and I am a mother of two children (7 year-old son and 3 year-old daughter). I am originally from South Korea, so English is my second language.

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David Robert Ciotola

From: Hubbard, Ohio
Email: horizonpatient1@neo.rr.com
Occupation: Student

Professional Profile: I am a junior in college majoring in accounting. I have an attendant to help me around campus. I do EMG biofeedback 2X/week and very much enjoy that and along with PT and OT am seeing a lot of progress. Anything else you want to know, don't hesitate to email me.

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Beth Clogston

From: Philadelphia, Pennsylvania
Email: bcbusinessz@aol.com
Occupation: Clinical Social Worker

Professional Profile:

  •  Licensed Clinical Social Worker
  •  Experience working with persons with physical disabilities who have severe mental illnesses
  •  Advocate for people who have speech difficulties
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Diedra Cole

From: Parsippany, New Jersey
Email: DCole360@aol.com
Occupation: Author

Professional Profile: I graduated on the Dean's list in 1997 from Morris County County College. I worked part - time for a fortune 500 company for eight years. Within the next two months, I will have completed my second book. Please peruse my website at your leisure www.diedracole.com Thank you.

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Courtney Cooper

From: Louisville, Kentucky
Email: CCCatlover12@aol.com
Occupation: Student

Professional Profile: I have spastic quadriplegia CP and am aspiring to be a case manager and advocate for people with disabilities, but this takes a social work degree. I am a sophomore in college. In high school I won the Who's Who Among American High School Students, and stayed on the honor role all four years. At the age of eighteen, in 1994, I left home to attend Lexington Community College. I left LCC to attend Carl D. Perkins Rehab Center. After that I went to Jefferson Community College in my hometown. I am also an aspiring writer.

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Kendall Corbett

From: Laramie, Wyoming
Email: kendall.corbett@gmail.com
Occupation: Coordinator of Consumer Activities, Wyoming Institute for Disabilities

Professional Profile: I've worked in the disabilities field since 1988, starting with a provider for services to people with developmental and cognitive disabilities in Colorado. I then went to work for an independent living center in Wyoming in 1991. In 1994, I went to work for Wyoming's Tech Act project, and in 2002, I became coordinator of Consumer Activities for the Wyoming Institute for Disabilities (WIND), Wyoming's University Center of Excellence on Disabilities.

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Adrian Couvillioin

From: Harvy, Louisiana
Email: acouvi@bellsouth.net
Occupation: retired

Professional Profile: First of all, let me say that I am 72 years old, and I have C.P. After spending 40 years, 20 years of working with people with disabilities, I am now retired. During those years, it was my honor to be a part of the UCP's CHOICE PROJECT. CHOICE was a five year demonstration project to help persons with severe disabilities reach gainful employment. CHOICE was in five cities including Pittsburgh, Detroit, and New Orleans. Each site had a coordinator and I was fortunate to be the coordinator for the New Orleans area. Over the years, especially during the CHOICE YEARS, I was lucky to meet with other disabled persons like myself in this area and across Louisiana and the Nation. I am telling you because I would like to write and sell articles on people with disabilities. Should your magazine, or if you know of a magazine, that would be interested in this, please let me know. Also, should you want more info on me just ask.

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Christine Crosby

View Associate Video

From: Omaha, Nebraska
Email: ccrosby5@cox.net
Occupation: Fitness Coordinator (Wellness Initiatives of Nebraska)

Professional Profile: EDUCATION METROPOLITAN COMMUNITY COLLEGE – Associate Degree in applied Science – Human Services Graduated August 1997 WEEPING WATER PUBLIC ELEMENTRY/HIGH SCHOOL – High School Diploma Graduated May 1993 HIGHLIGHTED ACADEMIC PREPARATION HUMAN GROWTH AND DEVELOPMENT BEHAVIOR MODIFICATION EDUCATION FOR SPECIAL POPULATIONS FIRST AID AND CPR COMMUNITY SERVICE REGIONAL DEVELOPMENTAL DISABILITIES COUNCIL STATE DEVELOPMENTAL DISABILITIES COUNCIL OMAHA TRANSPORTATION COALITION OMAHA ON THE MOVE VOLUNTEER SERVICE THE LOFTE COMMUNITY THEATRE THE SALVATION ARMY VSA ARTS OF NEBRASKA PRACTICAL EXPERIENCE LEAGUE OF HUMAN DIGNITY GOODWILL INDUSTRIES WORK EXPERIENCE GREATER OMAHA YMCA –Maple Street Branch Y- Care Outreach Specialist SPECIAL SKILLS GRANT WRITING

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Destiny K. Dash

From: Chevy Chase, Maryland
Email: destinydash@aol.com
Occupation: Recent College Grad - Theatre Studies

Professional Profile: Bachelor of Fine Arts, Theatre Studies University of Illinois at Urbana-Champaign (UIUC) May 15, 2005 Work Experience: Assistant to Director The Prompting Theater, Developmental Services Center, 1304 West Bradley Avenue, Champaign, Illinois 61820 June 7 to July 7, 2005 Member of Stage Crew, Colors in Action: Inside the Artist’s Studio Parkland College Theatre, Performances, June 2005 Volunteer, VSA International Festival, Artists’ Orientation Committee Washington, DC, 2004 Production Experience: Director and Producer, Senior Project Just Livin’ Two performances on April 24, 2005 Assistant Director Inner Voices Ensemble UIUC, 2003 Performance Experience: Head of a Worm Colors in Action: Inside the Artist’s Studio Parkland College Theatre, Performances June 10 & 11 Townsperson Orphan Train Parkland College Theatre; Champaign, IL, 2000 Gypsy, Mr. Fox Wind in the Willows East Chapel Hill HS; Chapel Hill, NC, 1998 Professor Willard Our Town East Chapel Hill HS, Chapel Hill, NC, 1997 Student Teenage Werewolf Oliver Wendell Holmes MS Alexandria, VA, 1993 Education: University of Illinois at Urbana-Champaign BFA in Theatre Studies. May 15, 2005 Parkland College, Champaign, IL 1998-2000 Course work in acting, stagecraft, design, dramatic analysis Santa Monica College, 2000-2001 Course work in voice, music, acting, stagecraft, design Related Educational Experience: North Carolina School of the Arts, Summer Workshop in Drama, Winston-Salem, NC 1996 Liberty, Art & Culture seminar at Bryn Mawr College; Bryn Mawr, PA (George Mason University’s Institute for Humane Studies). Summer 2003 Acting Seminar at National Theatre Workshop of the Handicapped Belfast, Maine. June 1999

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John Ethan Davidson

From: Willow, Alaska
Email: davidson@mtaonline.net

Professional Profile: I'm 18 but I would like to better myself and help others.  I'm good with computers and I know almost every think to do with computers.

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Lauren Destasio

From: Mooresville, North Carolina
Email: ldestasio@elon.edu
Occupation: College Student

Professional Profile: I am 19 years old and was diagnosed with CP at 19 months of age. I have had 3 surgeries to improve my mobility. I am currently a freshman at Elon University in Elon, North Carolina and I am studying Elementary Education.

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Jim Dobson

From: Boston, Massachusetts
Email: nw.Dobson0374@pop-hosting.com
Occupation: Manager

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Dina Dror

From: Los Angeles, California
Email: Altrntvs4CP@aol.com
Occupation: Student and advocate for others with CP

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Ryan Duncanwood

View Associate Video

From: Redding, California
Email: Ryan.duncanwood@gmail.com
Occupation: Augmentative Communicator Public Speaker

Professional Profile: I am a great advocate!

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Nancy E. Edmondson

From: Cedar Rapids, Iowa
Email: n3e3e3@yahoo.com
Occupation: student

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M. Darlene Fisher

From: Hendersonville, North Carolina
Email: hecatedee2@netzero.net
Occupation: Receptionist

Professional Profile: I am 35 years old. I have an AAS Degree in Administrative Assistant/Legal Secretary with a GPA of 3.85, and member of Phi Theta Kappa Rho Chi Chapter. I am attending my local community college to obtain a certificate in Medical Office. I am currently looking for employment. In the past I have been a secretary, a preschool teacher's assistant, math tutor for high school students, unarmed security guard and a foster parent for dogs and cats.

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Tim Flannigan

From: San Francisco, California
Email: TimFlann@aol.com
Occupation: TV Producer

Professional Profile: I first became active as a disabled advocate in 1973, when Nixon vetoed the Rehab Act. I was active with the American Coalition of Citizens with Disabilities in the '70's, when I lived in the Washington, D. C., Area. Professionally, I produced some news pieces for channel 9 in Washington, two things for NIGHTLINE, and talk shows for KRON here in San Francisco. I am now trying to develop my own programming under the name, "Thre Irish Storyteller".

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Leland Foster

From: Swanton, Ohio
Email: lfoster.2@adelphia.net
Occupation: Student - Mechanical CAD/CAM

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Masayo Furui

From: Osaka, Japan
Email: masayofurui@yahoo.co.jp
Occupation: Researcher

Professional Profile: 1952 born with Cerebral Palsy.
1973 Founded "Osaka Association of People with CP".
1974 Founded "West Union of APCP" President.
1975 Secretary general of "Japanese Association of People with CP".
1976 Founded "National Disability Right Movements Council".
Committing community, raised 3 kids (aged 27, 26, 25), re-educated husband.  

1991 nation wide TV show "My life" afterwards many lectures titled "I enjoy my life unless my BRAIN DEAD" at high schools and junior high schools around the country. Showing disability pride, she has been taking care of her mother with traumatic brain injury, dementia, diabetes, depression and other diagnosis after the mother disabled.

Recently, she initiated an on-going project of Secondary Condition Study among Adults with CP for its prevention, encouraging her husband and old colleagues. She also has made outstanding impact on expert professional academies all over the world such as AACPDM, WCPT, and EACD by attending their congress as the most knowledgeable co-presenter. It has been making big changes on those professionals attitudes, focusing more attention to adult issues.

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Cynthia Glick

From: Laguna Woods, California
Email: Lyn.Gari@gmail.com
Occupation: owner of The Resume Shop, free lance writer, graphic designer, photographer

Professional Profile: graphic designer, artist, library assistant, librarian and archivist, peer counselor, Handler of a therapy/ hearing dog, very skilled in digital photography. BA degree in English Literature, Certificate in Graphic Design. Vast knowledge of Abode Photoshop...

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R. Dale Grinder

From: Arlington, Virginia
Email: dgrin200a@comcast.net
Occupation: Historian, USDOT

Professional Profile:

  •  Historian, United States Department of Transportation
  •  Member of Transportation Research Board Committee on Transportation History (1997-present)
  •  Member of Society for History in the Federal Government (1987-present)
  •  BA (1966), Thiel College, Greenville, PA
  •  MA (1968) and Ph.D., University of Missouri, Columbia
  •  Former staff member, Mainstream, Inc. and American Coalition of Citizens with Disabililities (1978-81);
  •  Charter member, Handicaps Unlimited of Virginia, which spawned the Independence Center of Northern Virginia. A nine-year success story, DateAble.
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Kurt Hanson

From: Billings, Montana
Email: Musicmaker650@bresnan.net
Occupation: Computer and Electronic Repair

Professional Profile: I worked as an electronics tech for 37 years. I am married to a wonderful AB woman named Ella.  We have no children, just 4 beautiful cats. I'm 54, and I was born with Spastic Diplegia CP.

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Kelvin Hawkins

From: Washington DC
Occupation: BA student with major in social work

Professional Profile: I am a  28 year old male student who attends UMBC (University of Maryland, Baltimore County) with a major in social work. I would like to network with other people with CP.

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Missy Lynne Herndon

From: Newport, Tennessee
Email: missyhwiggles@aol.com

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Mark Hill

From: Gresham, Oregon
Email: deafhill@gmail.com

Professional Profile: Formerly worked for CSD (formerly Communication Service for the Deaf) - North Dakota Branch - Community Specialist, Advocate, Workshop Presenter, Video Relay Services Installer, Unit Director, Administrative Assistant, American Sign Language (ASL) instructional Coordinator, Trainer and Instructor. Former ASL teacher at a public school - Graduated from Gallaudet University - 1975, BA in Government - Dual Disabilities - Deaf and Cerebral Palsy -North Dakota Association of the Deaf 1976 - 2006, Vice-President - 2003 - 2005 NDAD Representative to the North Dakota Disability Advocacy Consortium, 2000 - 2006, Lobbyist, 1997, 1999, and 2003 - 2005, Chairman, Legislative and Education Advocacy Committee, 1995 – 2005 Editor, NDAD NEWS,1988 - 1990, 1993 - 1997 and 2000 – 2003, Board Member at large, 1990 – 1993, Chairman, Services to the Deaf Study Committee, 1990 - 1992, President, 1987 - 1990, Chairperson of 1990 Combined NDAD Convention/ ND School for the Deaf\'s Centennial Celebration June, 1990 Secretary, 1976 - 1985 ASL Instructor for NDAD 1994 – 1998, Author of four ND legislations – Visual Smoke Alarms for Deaf Tenants Law, Interpreter Rights Law, American Sign Language course as an elected course at the high school level, and Interpreter Certification Law. -Cerebral Palsy and Deaf Organization - Member 2004 - present Vice President - 2005 - Present -ND Registry Interpreter for the Deaf , 1978 – 1990 and 1998- present Founding member NDAD Liaison member, 2003 - 2005 President, 1988 – 1990 and other positions -North Dakota Disability Advocacy Consortium , 2000 – 2006, Vice Chairman, 2004 - 2005 -State Individual with Disabilities Education Act Advisory Committee, state-appointed member, 1997-2003 -Do It Center Region 8 Advisory Committee, FRCC (Devnver, CO) – 2001 – 2003 -Freedom Resource Center for Independent Living Board member, 1995 – 2001 Vice Chairman, 1997 - 1999 -Awards received - 1983 and 1985 Lake Region Employed Handicapped Person Awards,1983 State of North Dakota Employed Handicapped Person Honorable Mention Award,1999 North Dakota Association of the Deaf Recognition Award, 2005 National Association of the Deaf/North Dakota Association of the Deaf Golden Hand Award

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Joan Kash

From: Omaha, Nebraska
Email: djkash@cox.net
Occupation: Customer Service Representative

Professional Profile: BA in Spanish and Sociology Masters in Social Work Employed as a bilingual customer service representative for Woodmen of the World Life Insurance in Omaha NE.

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Rebecca Kingsley

From: San Diego, California
Email: rskingsley@cox.net
Occupation: Student

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Robert L. Kintz

From: Brighton, Massachusetts
Email: kintzer_78@hotmail.com
Occupation: Librarian

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Sally Kraus

From: Boston, Massachusetts
Email: bku.skraus6766@real-cheap-email.com
Occupation: Manager

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M Elizabeth Latimer

From: Bethesda, Maryland
Email: Bethlatimer@aol.com
Occupation: Neurologist, Child and Adult

Professional Profile: I am a neurologist who has a special interest in treating patients with Cerebral Palsy. I am in practice in Bethesda, MD and have extensive experience regarding spasticity management. I am also on the Board of Directors of the Catholic Coalition for Special Education which is dedicated to full inclusion within the Catholic schools for children with disabilities.

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Heather Lavia

From: Humboldt, Tennessee
Email: comfychairs29@yahoo.com

Professional Profile: Am working on setting up my own business with my mother and father. Have attended the Star Center for vocational training and have spoken at numerous fund raisers. Attend the Cerebral Palsy Adult Center in Jackson, TN and appear on most of their telethons. Will soon be an advocate through Prentke-Romich, speaking at schools, etc., to educate people about augmentative communication devices.

I live at home with my parents, 4 dogs, three fish, and a miniature parrot. I have a 5 month old nephew that I love dearly. I attend church and bible study weekly and love when we have revival. I really like going to Tunica and playing the slot machines. Right now my favorite activity is attending Partners in Policymaking and meeting all the great people involved.

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John Lawton

From: Lansing, Michigan
Email: jolarton@aol.com
Occupation: Accountant

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William Lee

From: Bowie, Maryland
Email: wcljr@verizon.net
Occupation: Application Programmer

Professional Profile:

  •  University of Wisconsin; 1973 Bachelor of Arts, Computer Science
  •  Prince George's Community College; 1970 Associate in Arts, Business Administration
  •  Independence Now. Inc. - (Independent Living Center serving Prince George's and Montgomery Counties) Founding Board member (1994); Interim-President (1994); President (1994 to 9/1996), Treasurer (9/1996 to 9/1998); Board Member (9/1998 to Present)
  •  Metropolitan Washington Area Transit Authority Elderly and Handicapped Advisory Committee (1995 to 1996)
  •  Metro Access Para transit Sub-committee 1995-1996
  •  High School/High Tech - NASA/Prince George's and Montgomery Counties United Cerebral Palsy Project Advisory Committee 1993;
  •  High School/High Tech - Prince George's Committee to Promote the Employment of People with Disabilities and Private Industry Council Project Advisory Committee
    (1989 to 1992)
  •  Project Empower - Private Industry Council Project Advisory Committee and mentor (1991 to c1993)
  •  Amecom Computer Users Group (c1988 to 1992)
  •  IEEE; Computer Society (c1976 to present)
  •  Maryland Technology Assistance Project's Advisory Committee (1989 to 2001)
  •  Prince George's County Commission for Persons with Disabilities (January, 1986 to June, 1994)
  •  Continuing member Accessibility Committee Appointed Chair January, 1986
  •  Accessibility Committee, 1986 to present
  •  Prince George's County Office for Coordination of Services to the Handicapped Advisory Committee (Appointed July, 1980 to January, 1986) (Appointed Chair 1984) (ad hoc Member since 1976)
  •  Prince George's Committee to Promote the Employment of People with Disabilities (1982 to c1999)
  •  Representative to the County Council Task Force Employment September, 1985
  •  Prince George's County Accessibility Committee (1976 to 1986)
  •  Prince George's and Montgomery Counties United Cerebral Palsy Board (1982 to March, 2004) Vice President (1994 to March, 2004) Personnel Committee (June, 1984 to May, 1985) Program Committee (June, 1984 to December, 2003)
  •  Easter Seal Advisory Committee Attendant/Attendee Training Program (March, 1984 to July, 1984)
  •  Division of Vocational Rehabilitation Advisory Council, Region II, Department of Education, State of Maryland (March, 1983 to 1992)
  •  Maryland Attendant Care Advisory Committee for the Maryland Attendant Care Program c1993—c1995
  •  City of Bowie, Maryland Accessibility Committee (August, 1984 to present)
  •  International Society for Augmentative and Alternative Communication (April, 1984 to 1992)
Awards:
  •  One of ten Outstanding Prince Georgians of the Year for 1994.
  •  One of ten outstanding volunteers of Maryland 1990.
  •  One of ten outstanding volunteers of Prince George's County, Maryland 1989.
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Becky Legge

From: Burke, Virginia
Email: blegge@cox.net
Occupation: Homemaker

Professional Profile: I have been a girl scout volunteer since my older daughter became a brownie in 1987 and am still volunteering even though my younger daughter is in college.

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Barbara Bobbi Linn

From: Bronx, New York
Occupation: Writer

Professional Profile: I have an MA in rehabilitation counseling. Was the founding director of Bronx Independent Living Services, served as Chairperson of the New York State Independent Living Council. Now I am retired, but write. I just published a memoir, "Ode to a Diet Coke: Disability, Choices and Control", which can be gotten at www.jimsaminc.com. I also write for Independence Today.

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Nicole Lomerson

From: Ann Arbor, Michigan
Email: nlomerso@umich.edu
Occupation: Research Coordinator

Professional Profile: Nicole Lomerson holds a master's of public health in health behavior/health education from the University of Michigan. She conducts outcomes research at the University of Michigan School of Public Health. She is particularly interested in reproductive health concerns for persons with disabilities, as well as aging and secondary conditions.

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Charmaine Lydon

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From: Washington, DC
Email: lydonc@prodigy.net
Occupation: Social Worker

Professional Profile: Born outside of Pittsburgh, Pennsylvania and grew up in Butler County, Pennsylvania.  Dual disabilities: Deaf with Cerebral Palsy.  Graduated with a B.A. in Social Work from Gallaudet University in 1995; Graduated with a Master's in Social Work from University of Pittsburgh, Pennsylvania in 1998.

Currently working as a social worker with four years of experience within foster care, post adoption support services, adoption, and intake/investigation programs in the child welfare system.  Published writings and journals in various publications on the issues of Deafness and Cerebral Palsy.

One of the founding members and currently Vice President of the Cerebral Palsy and Deaf Organization (CPADO); Presented internationally at the World Federation of the Deaf at the World Congress of the Deaf in Montreal, Canada in July 2003 on the issues of cerebral palsy within the Deaf Community: trials, challenges, and recommendations; Presented nationally at the Rehabilitation Services Administration/Vocational Rehabilitation Services Conference for Statewide coordinators for the Deaf and Hard of Hearing Clients in May 2004.

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Stephen Daniel Lyons

From: Columbia, SC
Email: stvlyons@yahoo.com
Occupation: Systems Engineer

Professional Profile: I am currently living and working in Columbia, SC as a systems engineer. I work for CSC. I have worked here since Jan 2008. I was hired as a contractor with Bender Consulting. After 6 months I was hired on full time by CSC. I have worked in IT for 15 years in various roles. Prior to joining Bender/CSC, I worked for National Techteam in Dearborn, MI at Ford Motor Company. I look forward to interacting with and meeting other group members.

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Nathan Lee Mackey

From: Charlotte, North Carolina
Email: helio295@yahoo.com
Occupation: Call Center Communications Representative

Professional Profile: Current Occupation Professional Customer Service Representative, Billy Graham Evangelistic Association, Charlotte, North Carolina since November 2003.

Previous work experience in public relations and retail sales for major consumer electronic store chain. President and CEO of Low & Slow Aviation, LLC, a small company providing consulting, acquisition, brokering services as well as sales and parts support for Helio Courier aircraft, www.stolaircraft.com.

Volunteer Work JAARS Inc. Waxhaw, North Carolina – Public Relations Volunteer assigned to the Aviation Dept. Duties include guest flight operations safety volunteer, narrator for air show performance.  Also experience in long-term care facility volunteer Organizational Membership Member of the Aircraft Owners and Pilot’s Association 2002-Present

Hobbies/Interests Piloting small aircraft, 55 hours of official logged time, 3 hours solo time. Avid remote control aircraft flying as well. Pianist for 15 years for church and social events, member of two bands, keyboardist for country music singer in 1999.

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Jesse Magee

From: Eldersburg, Maryland
Email: info@drummerguymd.com
Occupation: Professional Drum Instructor/Singer-Songwriter

Professional Profile: I am a 24 year old Singer/Songwriter and an accomplished drummer with over 14 years of experience and employed as a professional drum instructor at Jam's Music Store in Eldersburg, Maryland (specializing in teaching children with disabilities). I have CP, with my right side affected, limited vision (no peripheral vision) and learning issues. I have performed many times within the Baltimore music scene, including headlining at Rams Head Live, Recher, Fletchers and many more (MySpace site to here my music (http://www.myspace.com/leftstronger). My most recent success story was performing America the Beautiful with my guitarist at the DC National Mall in front of a 100,000 + attendees for the Green Apple Festival, largest Earth Day Festival in the Country. Please review video on YouTube, enjoy! http://www.youtube.com/watch?v=xMgX3Lp3Adk. I have accomplished all this and more despite many personal and family challenges; nothing will stand in the way of continued success and being a role model for others.

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Kelly Ann Magee

From: Mount Airy, Maryland
Occupation: home maker

Professional Profile: I am 39 years old. I have a mild case of CP. I have a slight speech impairment other then my speech I can function as everyone else. I worked for the federal government for 12 yrs. I have been married for 11 years to a man who doesn’t have a handicap. I have 3 sons. I volunteer in my son's classroom. I am the president of the Box Tops / Campbell for Education Committee. I am also involved in teaching Sunday School.

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Larry Manhan

From: Canoga Park, California
Email: ucplm@scrapdr.com
Occupation: VP Projects for BCS Corp.

Professional Profile: Please go to www.ucp.org and scroll down to see the collection box we supply. Also click on donate then recycle and read the page about how we work. Let me know if you think we have a fit for you.

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Carol Marfisi

From: Philadelphia, Pennsylvania
Email: cmarfisi@temple.edu
Occupation: University Instructor

Professional Profile: I earned my Masters of Arts degree in counseling from Edenboro University in 1977. Since then I have held numerous upper management positions in the area of Human services for people with disabilities. In 1994 I was hired by Temple University's Institute on Disabilities as a project staff coordinator and later became an Instructor in Disability Studies. I have published various papers on sexuality, parenting, independent living etc. Currently I am involved on a project with the school of Multi-media communications at Temple University as a creative writing consultant and performer.

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Nadia Massuda

From: Baltimore, Maryland
Email: nmassuda@cs.com

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Justin Mattes

From: Woodcliff Lake, New Jersey
Email: jaymatt1978@optonline.net
Occupation: Freelance Writer

Professional Profile: I am a freelance writer working out of my house. I have been published in numerous radio communications magazines and am a correspondent for my local paper. My advocacy work began three years ago working with victims of medical malpractice, like myself, to persuade Congress not to put a cap on medical malpractice award. I have also assisted in other legislative matters.

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Erin Louise McCoy

From: Santa Cruz, California
Email: madonnidad@gmail.com
Occupation: Research Assistant, San Francisco State University, Graduate Student

Professional Profile: B.A., American Studies, University of California, Santa Cruz, 2004 M.A., Ethnic Studies, San Francisco State University, 2006 (fall semester) Co-Author of an in-process paper to be submitted to the American Journal of Sociology Currently writing a masters thesis on the subject of how spirituality influences the healing processes for patients diagnosed with breast cancer

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Mark Clinton McQueen

From: Omaha, Nebraska
Email: Mmcqueen1@cox.net
Occupation: self advocate

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Wendy J. Mee

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From: Forestville, Maryland
Occupation: Medical Support Assistant

Professional Profile: I have a B.A. in Government & Politics from the University of Maryland, College Park(2000). I now work as a medical support assistant at Malcom Grow Medical Center on Andrews Air Force Base.

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Marcelle L. Meisel

From: Windermere, Florida
Email: MLMEISEL@msn.com
Occupation: Research Specialist at Walt Disney World

Professional Profile:

  •  Independent Living Specialist
  •  Executive Director of DateAble/Baltimore for about 8 months
  •  Access Coordinator for The Governor's Office on Volunteerism
  •  Vice-chair of the Maryland D/D Council for 2 Years
  •  Have served on many Boards and Committees related to Disability.
  •  Associate Member of The College of Professional Chaplains
  •  Licences in Massage Therapy
  •  Completed an Internship with Walt Disney World (Orlando) and am working as a Campus Rep. for The Disney Company.

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James Andrew Michels

From: Scarsdale, New York
Email: JamesA.Michels@gmail.com
Occupation: Systems Project Leader/Information Technology

Professional Profile: SCARSDALE VILLAGE Council for people with disabilities member 1996-current Chair 1999-2007 While chair started program for village businesses to use decals indicating they are accessible to consumers with all forms of disability Personally site checked village library, curb cuts, and painting of new disabled spot at high school. Employment: Jacobi Medical Center managed care department 1999-2001, information technology department 2001-current Education B.A. Yale University 1993, MPA NYU Robert F. Wagner School of Public Service 1999 certificate LEND (Leadership Education in Neurodevelopmental Disabilities) 1999 Westchester Institute for Human Development

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Kristy Millican

From: Germantown, Tennessee
Email: blessedangel05@gmail.com
Occupation: Student

Professional Profile: I was a counselor at a summer camp for children with disabilities.

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Melissa Nicol Mitchell

From: Eugene, Oregon
Email: melissa_n_mitchell@yahoo.com
Occupation: Public Relations/Writer/Speaker

Professional Profile: Melissa Mitchell is the Outreach & Training Coordinator for the NCDE. She develops and presents trainings on disability and exchange for conferences and for organizations. Melissa, who uses a wheelchair and has a service dog, can relate her trainings and consultations to her own experiences as a student and teacher in France. Melissa holds a degree in Communications from Central Washington University. Previously, Melissa served on the Washington State Disability Council, worked on youth projects, and conducted disaster preparedness training for people with disabilities. Please see the following links for more details: http://www.linkedin.com/in/melissanmitchell http://www.servicedogsawayoflife.blogspot.com

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Bonnie M. Moulton

From: Philadelphia, Pennsylvania
Email: moulton2@temple.edu
Occupation: Researcher/Student

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Cheryl Myers

From: Waterford, Michigan
Email: heidicraze@yahoo.com
Occupation: Independent Beauty Consultant

Professional Profile: I was former Miss Deaf Michigan back in 1997-1999. I have attended Michigan State University. I was an athlete in USCPAA. I competed in the Paralympics in 1992 (can't remember exact year). I'm now currently trying to run my own business selling cosmetics and also being involved in the deaf community.

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Shelley Nixon

From: Newton Square, Pennsylvania
Email: snixon77@comcast.net
Occupation: Self-employed

Professional Profile: I graduated from Cabrini College, Radnor, PA in December 2003 with a B.A. in Human Services. My career goal is to work with children who have disabilities and their families. I presently work part-time in several early childhood settings, presenting my Imaginative Listening program. I served on the Cabrini College Student/Faculty Disability Awareness Committee throughout my college years. I served a two-year appointment to The Federal Communication Commission Consumer/Disability Telecommunications Advisory Committee.

I am presently a member of the Assistive Technology Committee for the Institute of Disabilities at Temple University. I enjoy performing with the AbleArts Theater Group, where I also serve as an officer. In 1999, Scholastic, Inc. published my autobiography, "From Where I Sit -- Making My Way With Cerebral Palsy."

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Janet Noyes

From: Silver Spring, Maryland
Email: jnoyes1952@aol.com
Occupation: Library Technician

Professional Profile: Founder and Past President of CP and Deaf Organization. (CPADO) I work at National Library of Medicine at NIH as Library Technician.

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Victoria Page

From: Wingdale, New York
Occupation: Writer/Public Speaker

Professional Profile: I was born with Spastic Diplegia. I have a slight speech impairment but it doesn't stop me from doing lectures at local colleges and universities since 1996. In 1998, I was a co-presenter at the American Occupational Therapy Conference (AOTA) in Baltimore Maryland. I have a Bachelors Degree in psychology and have written articles for some on-line publications. I hope to eventually get my Masters degree in Social Work or Counseling.

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Melissa Perrott

From: Germantown, Maryland
Email: msp64@verizon.net

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Calvin Elliott Peterson

From: Lithonia, Georgia
Email: disabledinaction009@comcast.net
Occupation: Executive Director

Professional Profile: Booker T Washington High School, Atlanta, GA.Graduate Long Island University Graduate, B.A. 1978 Ordained Ministare African Methodist Episcopal Church Founded and Directs, Disabled In Action, a non profit community based organization Author of "Nothing Is Impossible", and empowerment tool for the disabled, their families and their caregivers.

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Sukaina Pirbhai

From: Mwanza, Tanzania
Email: tuliptz@yahoo.com
Occupation: Student

Professional Profile: In my 27 years, I’ve taught a bit of French, English and Arabic. Some of the art and crafts that I’ve learnt are, pot decorating, ceramic painting, making stuffed toys, and applying henna. I’ve learnt some accounts and computer courses too. Now I’m learning some Persian. I’m interested in learning languages. If anyone has some good language correspondence courses that I could do online, please let me know. You can email it to me. That’ll be very kind. I would like to have some CP friends and social life as I don’t have it here in Tanzania.

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David Lee Poff

From: Manassas, Virginia
Email: IBRCN24@yahoo.com

Professional Profile: In my younger years I helped my best friend, who also has CP build a 69 Pontiac GTO into a 1/4 mile race car. He and I did everything to the car from wiring to engine repair to transmission and rear end swaps. I have many personal accomplishments, as we all do, but I find working on that old goat to be one of a select few that stand out.

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Rob Pritts

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From: Aurora, Illinois
Email: rprittscpa@comcast.net
Occupation: Accountant

Professional Profile: I am a 1995 University of Illinois Urbana-Champaign graduate and passed the CPA exam in 1997. I have been a financial accountant for a special education cooperative since 1998. In 1999 I was one of the coaches for a junior college speech team that won the individual events national tournament. I have 12 years of experience in competitive speech. Seven years as a competitor and 5 year as a coach. In 2002 I published my first book From CP to CPA: One Mans Triumph over the Disability of Cerebral Palsy. I also have goals to be a public speaker.

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James Protho

From: Springdale, Pennsylvania
Email: jprotho@comcast.net
Occupation: Computer Programmer/Analyst

Professional Profile: I graduated from Edinboro University of Pennsylvania with a bachelor's degree in computer science in 1992 then to the University of Pittsburgh to earn my master's degree in rehabilitation science in 1998. I worked for the State of Pennsylvania as a web designer before landing a position at Highmark Blue Cross/Blue Shield as a computer programmer/analyst in 2001.

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Scott J. Putnam

From: Worcestor, Massachusetts
Email: scottjputnam@msn.com
Occupation: Youth Services Coordinator

Professional Profile:

  •  Center for Living & Working, Inc. Worcester, MA Transition to Adulthood Program Coordinator/ Youth Specialist 9/02-Present
  •  Coordinate a sub-contracted program by Massachusetts Rehabilitation Commission to provide Independent Living Services to teenage consumers (ages 14-22) with disabilities to transition into adulthood.
  •  Teach teenagers with disabilities to live independently with doing skill training and peer counseling
  •  Supervise services provided by other Independent Living Specialist to teenage consumers
  •  Generate process reports for Massachusetts Rehabilitation Commission on the transition program
  •  Attend and advocate on behalf of the teenage consumer and family Individual Education Plan and Individual Transition Plan Meetings
  •  Manage a six-week summer recreational program and after school work-study program for teenage consumers "Let Them Ask" Disability Awareness Program Director 10/99-Present
  •  Develop an interactive disability awareness program for children in schools and summer camps throughout Massachusetts
  •  Attend schools to give presentations on disability awareness
  •  Prepare and write grant proposals for financial support to maintain the disability awareness program
  •  Market "Let Them Ask" Disability Awareness Program at trade shows and conferences
  •  Obtain speakers with various disabilities to present for a group of 30-80 children attending schools and camps Assistive Technology Independent Living Specialist 7/98-9/02
  •  Assist people with disabilities to live independently with doing skill training and peer counseling
  •  Evaluate and recommend different Assistive Technology devices for people with disabilities to increase their lives independently
  •  Tutor people with physical and cognitive disabilities on a PC, with Windows 95, 98, ME, XP, MS Office 97, 2000, XP, also using the World Wide Web and Email
  •  Designing and maintaining an accessible web site and laying out newsletter for the agency
  •  Public advocate speaking in front of government officials to continue funding programs which assist people with disabilities Web Designer 7/97-12/04
  •  Develop an accessible web site for the agency VOLLUNTER: Healing the Children- Northeast New Medford, CT 6/04-12/05 HOST FAMILY/FOSTER PARENT
  •  Hosting/parenting a teenage child from Honduras who is receiving medical treatment for club feet at Shriner’s Hospital in Springfield, Mass
  •  Arranging and transporting to/from medical appointments EDUCATION: Mass. Job Training Worcester, MA 06/95 AUTOMATED ACCOUNTING CERTIFICATE PROGRAM Massachusetts Hospital School – Brayton High School Canton, MA 06/91 HIGH SCHOOL DIPLOMA *Graduated with honors for On-Site Job Performance
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Matthew Rich Jr.

Check out Matthew's Latest CD!

From: Glassboro, New Jersey
Email: mrichjr@matthewrichjr.com
Occupation: Musician/Motivational Speaker

Professional Profile: Matthew Rich Jr grew up listening to all types of music, but Country Music is what called to him the most. He remembers his father always singing Elvis Presley, Willie Nelson, Hank Williams, Hank Jr, Marty Robbins, George Jones, and many others.

As Matthew grew up he would Fall in love with the musical styles of Alan Jackson, George Strait, Kenny Chesney, and Randy Travis. He would find himself singing along with his heroes all the time, but he never dreamed of being a singer, Matthew had dreams of helping handicapped children; he was born with Cerebral Palsy and he knew he wanted to make a difference.

In 2002 he became a volunteer for a school in New Jersey for handicapped children. In 2003 Matthew would get a paid position as the schools music teacher and has been working there to present day, and he continues to bring smiles to the children’s' faces. At the same time he started working at the school, he began to write his own songs. Songwriting would lead him to new dreams of musicianship.

In addition to being a musician he has also volunteered as a Motivational Speaker for the United Way, since 2004. He vows to donate money to organizations for Cerebral Palsy and Breast Cancer Research. In addition to all his volunteer work, Matthew has released an album entitled Joe The Corona Man (2005).

He is currently working on a new album entitled What My Brothers’ Meant To Me. Matthew continues to work hard to reach his ultimate goal, to become a mainstream Country Music artist and reach fans worldwide with his music and motivational skills. Visit Matthewrichjr.com today!!

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Eliza Riley

From: Sunnyvale, California
Email: eliza.riley@gmail.com
Occupation: Disability Program Navigator

Professional Profile: As the Disability Program Navigator at CONNECT! Job Seeker Center I have been able to build further upon my skills as a disAbility advocate. I have spent time working with staff on issues of disclosure and assistance. I have also been a guide as people got back on the employment track. This was done with recommendations of services within the county and peer support and advice. I have taken my basic knowledge of the system and developed it further by meeting key figures in the community and studying the disability movement more thoroughly. As a CalSafe AmeriCorps fellow, I have worked in the emergency/disaster related fields. I have authored a PowerPoint entitled “Are You Ready to Rock and Roll?” detailing the different particulars that a person with a disability must pay attention to. This year I was able to take a leadership position in the first annual Emergency Preparedness for Persons with Functional limitations. This conference, the first of its kind, focuses on disaster/emergency training for vulnerable populations. For the conference, I ran outreach, logistics, training and representations at press conferences. I have also taken an ASL course and learned more about the Deaf culture. I realize the need to have a plan in place and how important it is to have a level playing field.

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Lynn Rothman

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From: Falls Church, Virginia
Email: rothmanfam@softhome.net
Occupation: Project Manager for U.S. Government

Professional Profile: I have a B.S. in Library Science from Central Michigan University and M.S.W. from Virginia Commonwealth University. I have worked for the Federal Government for the last 15 years. I have a 19 years old son who is attending CalPoly University in California.

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Christine Rouse

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From: Haverford, Pennsylvania
Email: crouse@esfcamps.com
Occupation: Educator

Professional Profile: I graduated from Saint Joseph's University with a B.A. in Elementary Ed. and the Executive Director of "Kids Are Kids" a disabled awareness educational workshop. I am also the Site Director of The National Theater Workshop of the Handicapped (NTWH) In Philadelphia. I would love to see The CP Group grow and someday be mentors to teens with CP. I wish I had this group when I was younger.  Check out my website at www.christinerouse.com.

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Dr. Trina Ruth

From: Shippensburg, Pennsylvania
Email: gaelicgirl0@comcast.net
Occupation: University Professor

Professional Profile: I have a Bachelor's and Master's degree in English and Spanish. I also earned a Ph.D from the University of Florida. I have taught university level English literature and composition for 20 years. My professional articles have been selected for publication in England and the UK. I have written and presented several conference papers, presented among national and international colleagues at universities in Paris, France and in the U.S. I have been awarded competitive fellowships to continue my research and received a Who's Who Among American Teachers award. I travel to the United Kingdom every summer and often to New York City.

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Eileen Scanlan

From: Albany, New York
Occupation: Lead Teacher at a Head Start preschool

Professional Profile: I am a former poster child for UCP in Nassau County, New York. I was the first disabled student to attend my local high school in Long Island. I hold a bachelor's degree in Accounting and a master's degree in taxation from the University at Albany, State University of New York. I am currently the Assistant Director of State Accounting at the University. I've worked here in various financial positions for almost 17 years. I am also a member of the Disability Advisory Council at the University. We work to further accessibility of the campus and help to raise money for the Disabled Student Fund. This fund provides financial assistance to disabled students at the university for medical equipment and therapy, academic support services, and emergency repairs for wheelchairs. When I decided to major in accounting, it was field dominated by men. Women and people with disabilities were unrepresented, and still are, in the financial world. Having succeeded in this profession, I feel my life experience could really help a young person with cerebral palsy. I work a lot but, I'm looking for a way to "give back" in a meaningful way.

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Philip Schmucker

From: Fraser, Michigan
Email: Philschmucker@aol.com

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Mark Seamonson

From: Cooper City, Florida
Email: markseamonson@bellsouth.net
Occupation: Lead Teacher at a Head Start preschool

Professional Profile: I have mild spastic CP with all my limbs affected (left side more than right side).  I am 54 years old.  I have been married to my wife Lynn for 18 years. She deals with symptoms similar to mild CP due to surviving a benign brain tumor in 1978. We have a 17-year-old daughter named Leah. We are born-again Christians. I have a BS degree in Special Education and an AS degree in Child Development. I have been playing guitar since I was 13, and I am gradually learning to play the violin, the mandolin, and the banjo. I have put together a children's album with some original music on it. I am interested in traditional children's songs, especially little-known ones. I also play rhythm guitar in my church's worship band. There are a few other disabled musicians who attend my church. I have been teaching in various settings since 1990 and have been in my current job since 1997. I forgot to mention that I am blind in my left eye.

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Bob Segalman Ph.D., D.Sc. (Hon)

From: Sacramento, California
Email: DRSts@comcast.net
Occupation: CEO of nonprofit

Professional Profile: ROBERT Z. (BOB) SEGALMAN, Ph.D. 515 “P” Street, #403 Sacramento, CA 95814 Dial 711, request STS Relay, ask STS Operator to dial: 916-448-5517 E-mail: DRSTS@COMCAST.NET Founder and President, Speech Communication Assistance By Telephone, Inc. the first nonprofit public benefit organization in American history to provide national Telephone Advocacy for persons with speech disabilities, and in support of the FCC-mandated Speech-to-Speech National Telephone Relay service for persons with speech disabilities, which utilizes human Communication Assistants (Revoicers) to enable telephone use. Website: http://www.speechtospeech.org . Co-founder, Hearing Carryover technology concept. HCO enables speech disabled users of dual-party text- telephone relay systems to listen to callers (1991). Executive and Leadership Skills • Development and implementation of organizational strategic plans, trained subsidiary managers and other personnel, and effective management of strategic plan progress from inception to completion. Fulfillment of all requirements for Chief Executive Officer. • Initiation, development, and consultation to and for individuals with speech disabilities who require interpersonal Speech-to-Speech Communication Assistance (Revoicers) when interacting with the general public. • Frequent communications at the local, state and national levels with the general public, other organizations and entities, political representatives, and press representatives, including presentations at meetings, conferences and seminars, providing clear information and answering questions. Furtherance of organization goals for favorable public image. • Ability to communicate with diverse individuals in clear and non-idiomatic format for full understanding. Familiarity with usual social protocols utilized by individuals from other cultures, religions and racial-ethnic groups. Primary liason to other groups, organizations and entities involved with matters concerning constituent population. • Research Director for issues of concern to organization and constituency. • Provision of expertise, knowledge and direction in regard to planning and executing advertising activities of organization. Creation of plans for the creation of media to further organizational goals, and performance monitoring. Responsible for policies for, and production of, website information, fact sheets, press releases, etc. • Policy development for inclusion of individuals from minority groups, persons with disabilities, and other protected classes of individuals, in accordance with federal, state and local laws, regulations and ordinances. Gathered information concerning employee attitudes, morale and efficiency. • Review of staff and personnel at all levels, interviewed applicants for senior management positions, informed applicants of job duties, working conditions, etc. • Analysis of statistical and other data concerning constituent population, including information about socio-economic and other conditions, to determine present and future needs for supplies, materials, personnel, and other human, financial and material resources. • Development of strategies for information systems and technologies, including assistive technologies, based on long term goals. • Responsible for the over management and financial health of the organization. • Development of the direction of the organization, ensuring that the organization can meet those needs. Analysis of all facets of budget, comparing line items to comparable organizations, and recommendation of adjustments. Implementation and monitoring of organizational restructuring, as necessary. CAREER HISTORY Demonstrated research skills at the Ph.D. level, in all usual forms: qualitative (including historiographic and epidemiological, survey, questionnaire, open-ended, etc.) ,social science , and quantitative . Writing skills up to the Ph.D. dissertation level of academic writing. Gave invited testimony before the FCC. • Consultant on Speech Disability Telecommunications (1993 - 2004 (retired)): State of California, Department of Rehabilitation (CA-DR), Sacramento, CA. • Speech-to-Speech Consultant and Training Director (1999) Federal Communications Commission, Washington, DC. • Speech-to-Speech Outreach Consultant (1993-1998) State of California, Public Utilities Commission (CA-PUC), Telecommunications Program , Sacramento, CA. • Consultant on Disability (1979-1993) State of California, Department of Justice (CA-DOJ), Sacramento., CA. • Social Worker, (1972-1979) State of California, California Department of Developmental Services (CA-DDS), Sacramento. CA. • Assistant Clinical Professor, Pediatrics – Disability Adaptation Loma Linda University, Loma Linda, CA. EDUCATIONAL HISTORY • Doctor of Philosophy (Ph.D.), 1972. Dissertation Research in the area of Social Welfare and Sociology University of Wisconsin, Madison, WI. • Master of Science (M.S.), 1966. Major: Social Welfare and Sociology. Florida State University, Tallahassee, FL. • Bachelor of Arts (B.A.), 1965 Major: Psychology. University of Texas, El Paso, TX. BOOK Dr. Bob: My Life with Cerebral Palsy, accepted for publication, Attainment Company, Verona, WI, 2008. HONORS AND AWARDS • Honorary Doctor of Science (D.Sc.-HON), 2006. University of Wisconsin, Madison, WI • California Governor’s Trophy and Election to Hall of Fame, 1998 State of California, Governor\\\'s Committee for Employment of Disabled Persons, Sacramento, CA. Development of Statewide Telephone Access Services for People with Speech Disabilities. AAC RECOGNITION AAC Heroes Award, 2007 Prentke-Romich Company, Wooster, OH Pittsburgh Employment Conference Presentations: 1995, 2003 International Society for Augmentative and Alternative Communication Presentations: 1992 (Philadelphia) , 1994 (Maastricht), 2000 (Washington, D.C.) United States Society for Augmentative and Alternative Communication Vice President for Consumer Affairs, 1995-1996 References available upon request.

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Mike Smith

From: Boston, Massachusetts
Email: M_S_4930acx@fun-email-online.com

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Raquel St. Aubin

From: Denver, Colorado
Email: st.aubin.raquel@tchden.org
Occupation: Social Worker

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George T. Stone

From: Alexandria, Virginia
Email: qtstone@starpower.net
Occupation: Retired

Professional Profile: I have been retired for 14 years from a trade group in Washington, DC. I was employed with them for thirty-six years. I now live in a retirement Community in Alexandria, Virginia.

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Frank Taverna

From: South Boston, Massachusetts
Email: Taverna60@hotmail.com
Occupation: Store Clerk

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John Roger Thompson

From: Delhi, New York
Email: jthompson007@stny.rr.com

Professional Profile: I have an MBA (\'90) and BA in political science (\'81), both from Binghamton University. In addition to my sound educational background, I have strong communication skills. Unfortunately, I have not been able to utilize these qualities as I have lived in assisted living facilities for the majority of my life and have not been surrounded by people who were willing to advocate on my behalf with regard to exploring potential opportunities where I may be of service to others. This being said, I now realize that I must self-advocate in order to be of benefit to others as well as to myself. I sincerely desire to work in a capacity to help others diagnosed with CP as I know first hand how frustrating and isolating life can be living with this condition.

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Anne F. Todd

From: Washington, DC
Email: anneft@mac.com
Occupation: Public Affairs Specialist, Writer/Editor, Webmaster

Professional Profile: Federal Government civil servant with almost 25 years of experience in the realm of Public Affairs, including writing and editing, graphic design, desktop publishing, and developing and maintaining websites. Many years ago I was a Congressional staffer and was fortunate to be the liaison in our office for the Americans With Disabilities Act. More recently, I was the Section 508 coordinator for my Agency. Generally speaking, however, my career has not been centered on disability issues or advocacy. Today, as an aging individual with CP, I am interested in learning more about how to manage my disability and meet the (ever increasing) challenges that it poses. I have been frustrated by a lack of information about adults with disabilities and the impact of aging. I hope to benefit and learn from this association with the CP Group, to help me maintain my independence and health for as long as possible.

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Leon S. Triest

From: Allentown, Pennsylvania
Email: leon@ngcnotes.ngcsoftware.com
Occupation: Graphic Artist/Technical Writer

Professional Profile:

  •  United Cerebral Palsy (UCP) of Lehigh Valley, Bethlehem, PA, 1991-96
  •  Member of the Board of Directors, United Cerebral Palsy of Lehigh Valley (1991) through merger with LARC to form VIA of the Lehigh Valley (1996)
  •  Represented the local affiliate on state (UCP of PA) and national (UCPA) levels
  •  Chair, Development Committee, 1991-94
  •  Member of Merger Task Force, 1994-95
  •  Vice President of the Board, 1995-96
  •  VIA of the Lehigh Valley, Bethlehem, PA, 1996-Dec. 2002
  •  Chair, Via Board of Directors, 1996-98
  •  Member of the Board, 1996-02
  •  VIA Events, Bethlehem, PA, 2000-Dec. 2002:
  •  Member of Via Events Board since it's inception
  •  Former member of Great Chefs' Committee
  •  United Cerebral Palsy (UCP) of PA (State Organization), Harrisburg, PA, 1991-present
  •  Board Representative, UCP, Lehigh Valley & VIA, 1991-98
  •  Named "Volunteer of The Year", 1996
  •  At-Large member, 1998 - present
  •  Board Chair, 2000-2004
  •  United Cerebral Palsy Association - UCPA (National), Washington, DC, 1992-present
  •  Represented UCP, Lehigh Valley at National Conferences, 1992-95
  •  Represented VIA of the Lehigh Valley at National Conferences, 1996-98
  •  Represented UCP of PA at National Conferences, 1999-2004
  •  Member of Affiliate Services Committee, 1996-98
  •  Member, Nominating Committee, 1997
  •  Chair, Community Services Committee, 2001-2003 (now called Public Policy Committee)
  •  Member of UCP National Board of Directors, 2001-2004
  •  Member, Strategic Planning Committee, UCP, 2001-2002
  •  Member of Task Force re: UCP/Arc Public Policy Joint Venture
  •  Co-Chair, Steering Committee of The Arc-UCP Public Policy Collaboration, inception-present

    I bring a wealth of experience with local, state and National affiliates of UCP and have strong expertise in the area of legislative affairs. I have solid contacts in Washington, DC, a good reputation as a "go-to" guy and have testified before several House and Senate sub-committees. I have always and will always be a strong advocate for self-empowerment and ensuring that the services and supports that we with cerebral palsy need to be full, productive, contributing members in the communities of our choice.
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Morris Turner

From: Silver Spring, Maryland
Email: morrist@verizon.net

Professional Profile: I graduated from Frostburg State University in 1990 with a BS Degree in Economics. In 1993, I was a Legislative Analyst for the U.S. House of Representative, Subcommittee on Select Education and Civil Right. I developed an ADA compliance outline to evaluate the accessibility of Federally owned and/or operated buildings. Conducted accessibility compliance surveys in Congressional Buildings. Advised staff on legislative policy development and oversight regarding the Rehabilitation Act and the ADA.

Additionally, I have worked with other disability organizations, such as the President's Committee on Employment of People with Disabilities, American Association of University Affiliated Programs, and National Organization on Disability.

In June, 2002 I had surgery for my spinal cord injury. I had several discs removed from my neck and had a bone fusion. I lost all control of my body functions: sitting up, using my fingers, crawling, and even speaking for a very long time. I have been working on regaining all of my functions for the last three years and I have regained most of them back. The last hurdle I'm working on is to get up from my stomach to my knees independently as I used to be able to do. Hopefully within a year I can be an active member of the disability community once again.

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Chris Viau

From: Evanston, Illinois
Email: cvscooter77@yahoo.com
Occupation: Writer

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Laura K. Vogtle

From: Birmingham, Alabama
Email: lvogtle@uab.edu
Occupation: Occupational Therapist

Professional Profile: I have been an occupational therapist for many years, most of those spent working with children. As I have become older myself, I have become much more interested in what happens to all those children I worked with and what they are doing. At present, I am a university faculty member trying to do research on areas of interest to adults with cerebral palsy.

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Matthew Wangeman

From: Flagstaff, Arizona
Email: Matthew.Wangeman@nau.edu
Occupation: Disability Policy Specialist

Professional Profile: Chairperson of the Governor's Council on Developmental Disabilities for the State of Arizona. Project Specialist for the Institute for Human Development at Northern Arizona University. Master's Degree in City Planning from the University of California at Berkeley.

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Jeri Esocoff Wasco

From: Silver Spring, Maryland
Email: mswheelchairdc@aol.com
Occupation: Coordinator

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Hayley Waters

From: Bethesda, Maryland
Email: hylywtrs@yahoo.com
Occupation: Writer/Consultant

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Robert Watson

From: Brandywine, Maryland
Email: robert@dateable.org
Occupation: Executive Director, Dateable, Inc.

Professional Profile: Robert Watson is the Executive Director of DateAble Inc., a non-profit dating service for people with and without disabilities. He is also President of United Cerebral Palsy of Montgomery and Prince Georges County (Maryland) and advises many other disability advocacy organizations.

Robert married to his wife of 14 years, Lynn, whom he met through DateAble before he became the Executive Director. Lynn also happens to have Cerebral Palsy. He is also an avid Washington Redskins fan and enjoys spending time with his family in the southern Maryland area where he was born, raised, and still resides.

Through his exposure with DateAble and United Cerebral Palsy, Robert has delivered many presentations in the United States, Canada, and Australia on a variety of topics including disability awareness, sexual intimacy issues, and dating with a personal care attendant present.

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Thomas Webb

From: Chestertown, Maryland
Email: twebb@chesapeake.edu
Occupation: Director of Student Support Services/Adjunct Faculty Member

Professional Profile: Mr. Thomas Webb is a doctoral student in the Education: Innovation and Leadership program at Wilmington College in Delaware, and is a part-time faculty member at Chesapeake College where he teaches technology and psychology classes. He also directs a federal TRIO program designed to assist students who face challenges to their success at college.

In November 2004, Mr. Webb started on the Board of Directors for Easter Seals Delaware and Maryland’s Eastern Shore. He is also the President of the Board of Directors for the Mid-Atlantic Therapeutic Riding Association in Worton, MD. Mr. Webb was appointed by Governor Ehrlich to the Maryland Developmental Disabilities Council in September of 2004 and recently joined the organization' s executive council. He was formerly the Director of Programs for the Kent Center in Chestertown, MD. He has a BA in Political Science and a MA in Psychology from Washington College in Chestertown, MD. Mr. Webb resides in Kent County, MD.

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Edward Willard

From: Annapolis, Maryland
Email: ewillarjr@verizon.net
Occupation: Co-Director of "My Life Going Far" project with TASH

Professional Profile: Since 1990 been active in the disability field. Worked for United Cerebral Palsy Of Texas on a national nursing home outreach project. Was a founder of The Texas Home Of Your Own Coalition. Also co-founded Everychild Of Texas. Served on several state and national boards. Outside of work, I enjoy spending time with family and friends. At the age of 40 I have discovered the joys of cruises for vacations.

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Daniel J. Winchester

From: New York, New York
Email: DanWin22@aol.com
Occupation: Developmental Psychologist/Researcher Developmental Psychologist/Researcher

Professional Profile: Doctorate in Developmental Psychology from Albert Einstein College of Medicine in N.Y., Researcher/analyst on disability issues, Project Evaluator for Youth Abilities Project that trains youth employment agencies to accommodate adolescents with disabilities as they transition from school to marketplace.

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Sarina Winner

From: The Plains, Ohio
Email: pinkladysarina4@yahoo.com
Occupation: Artist

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Kelly Woodall

From: Raleigh, North Carolina
Email: kswoodall2001@yahoo.com

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Brady A. Woods

From: Washington, DC
Email: Brady.woods@dc.gov
Occupation: Recreational Therapist

Professional Profile: I had attained my BS Degree in Leisure Study in December 1990, I have been employed by DC Parks And Recreation Since 1989.

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Molly Work

From: Washington, DC
Email: m22t@aol.com
Occupation: Social Worker

Professional Profile: Hi my name is Molly and I have a mild case of cerebral palsy. My goal is to establish myself as a psychotherapist for people with physical disabilities here in DC. I am a Clinical Case Manager at My Sister’s Place Washington, DC. Provide clinical case management and individual therapy to battered women and children. Clinical Case Manager Max Robinson Center of Whitman-Walker Clinic. Served as point of contact for external organizations, institutions, and individuals Outreach Assessment Counselor Second Genesis. Conducted comprehensive bio-psychosocial and chemical dependency assessments of adults in order to determine the proper level of care. Administered the Gain Q. Case Manager N Street Village Washington DC. Provided clinical case management to approximately 25 dually-diagnosed homeless women in a day shelter. Participated in clinical staff meetings and in a multi-disciplinary team Field Placement/Social Work Intern Bread for the City Washington DC. Represented organization at a conference Field Placement/Social Work Intern Washington Hospital Center. Social Work Assistant RCM of Washington. Served as Incident Management Coordinator. Special Olympics Coordinator. Represented RCM at client annual hearings. Ensured that residents’ Medicaid recertification was current. Assisted resident’s with obtaining birth certificates, social security cards, ID cards and Metro passes. Supervised residents at their day programs. Attended annual IHP (Individual Habilitation Plan) meetings.

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Trisston Wright

From: Prattville, Alabama
Email: TRISLWRIGHT@mindspring.com
Occupation: Free Lance Artist, Newspaper Columnist, and Associate Manager of Crazy Bill's Fireworks

Professional Profile:  Education: -- 1993 Prattville High School - Prattville, AL Advanced High School Diploma·First Student with a disability in Autauga County history to be “mainstreamed” 1st to 12th grade·Advanced Alabama High School Diploma -- 2000 Auburn University at Montgomery - Montgomery, AL Bachelors of Science in Business Administration· Marketing Major· Graduated Summa Cum Laude Awards received: -- 1994-1997 – Delta Zeta Academic Awards -- 1994-- Delta Zeta “Outstanding New Member” Award -- 1995– Delta Zeta “Diamond Scholarship” Award -- 1993-2000 -- AUM’s Deans List -- 1995 - The National Dean’s List -- 1995 — First runner-up on the AUM Homecoming Court -- 1995– Order of Omega “Excellence Award” -- 1995—Nominated by AUM and Selected for recognition by the American Legion for outstanding service to the disabled by promoting leadership opportunities and facilitating employment of people with disabilities -- 1995-- “Outstanding Student of the Year” Award from Montgomery Area Committee on the Employment of People with Disabilities -- 1996-1997 –Who’s Who Among Students in American Universities and Colleges -- 1996 — AUM Representative at the Southern Disability and Leadership Conference -- 1996– Delta Zeta “Outstanding Sophomore” Award -- 1999-2000 – AUM Marketing Department’s Outstanding Student --1999-2000 - AUM’s Chancellor Scholar Award -- 2003 , 2004, and 2005 – Artwork selected to join the VSA “Traveling Art Exhibition” -- 2004—Crowned Ms. Wheelchair America/Alabama 2005 -- 2005 – City of Prattville declares July 19, 2005 “Trisston L. Wright Day” -- 2005 – Presented the “Key” to the City of Prattville -- 2005 - Represented Alabama at the "Ms. Wheelchair America 2006 Pageant" in Albany, NY Work experience: -- 1990-Present -- Assistant Manager/Sales Associate for Fireworks of Alabama, “Crazy Bill’s”, a Seasonal Business – 4th of July and New Year’s -- 2000-Present -- Free Lance Artist - Oil Paintings – landscapes and seascapes -- 2004-Present -- Newspaper Columnist for the "The Montgomery and Prattville Gazette" Newspaper –My column is called “Trisston’s Tidbits”. Volunteer experience: Montgomery Museum of Fine Art, Habitat for Humanity, “Very Special Artist” (VSA Arts) of Alabama, Montgomery Center for Independent Living Advisory Board Member & Public Relations Committee Chair, City of Prattville Arts Council Board Member Professional membership: Phi Kappa Phi, Delta Zeta Sorority, Phi Eta Sigma, Mu Kappa Tau, Former Student Rep. Americans with Disabilities Act Taskforce at AUM, Order of Omega, Montgomery Art Guild, Rolling Across Alabama Hobbies: Oil Painting, Arts and Crafts, Reading, Modeling

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DESMOND C. YOUNG, III

View Associate Video

From: Baltimore, Maryland
Email: dcyoung3374@hotmail.com
Occupation: Information Tech Specialist

Professional Profile: I work for the Center for Medicare and Medicaid Services.

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